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A survey on support needs for preimplantation genetic testing

Improving support for people undergoing preimplantation genetic testing for a monogenic disorder (PGT-M) on the UK NHS

You are being invited to participate in an online survey exploring people's support needs around preimplantation genetic testing. 

This survey aims to help us understand the experiences of people who have used, or considered, preimplantation genetic testing for monogenic conditions (PGT-M). You will be asked about your journey with PGT-M, what support you found helpful, and what support you think is needed at different points. Your responses will directly shape the design of a project that aims to develop and test a better package of support for people undergoing PGT-M on the NHS.

This survey is for everyone who has been through the PGT-M journey - not only the person who had the physical treatment. If you are the partner, co-parent, or supporting person, your experience is equally important to us and this survey is for you too. Please share this survey with your partner if you wish.

This study is being done by Dr Alisdair McNeill from the School of Medicine and Population Health at the University of Sheffield. It will take approximately 10 minutes to complete. If you are interested in taking part, please read and download this participant information sheet which details how your information will be managed during and after the study. If you have any questions, please email Dr Alisdair McNeill at [email protected].

This survey is available in English. If you would prefer to complete it in another language, or if you need support to complete it, please contact Dr Alisdair McNeill and we will do our best to help. The survey can also be completed over the phone if you prefer - please contact us to arrange this.

Your participation is entirely voluntary, and you can withdraw at any time by closing the browser window. Your responses will only be recorded if you press ‘submit’ at the end of the survey. You are not required to share your name as part of this survey.

Before you take part in this survey, we need to record your consent to 1) take part and 2) for your data to be managed and used as outlined in the participant information sheet. Please read the statement below and tick the box if you wish to give your consent and continue to the survey
I have read and understood the participant information sheet dated [12.08.26], and I agree to take part in the survey.
I have read and understood the participant information sheet dated [12.08.26], and I agree to take part in the survey.
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